This section includes information, guidance and practice-based reflections to support practitioners working with children and young people with learning disabilities and their families. It aims to support the development and routine use of outcome measures and feedback tools acknowledging the particular challenges involved so with this client group.
“ROMS [Routine Outcome Measures] need to be meaningful for the child or young person with learning disability, their family and clinicians. ROMS must form part of the therapeutic relationship and help to inform clinical practice through interpretation and discussion. They need to be fit for purpose and accessible to everyone who is asked to use them to promote a genuine appreciation of the partnership with service users. Consideration needs to be given to the individual’s ability (disability) and culture.”
Pill J., with Shrubsole, S. & Draper, E. (2013) Can CYP IAPT Routine Outcome Measures be used in a meaningful way with CYP-LD & their Families? CYP-IAPT Leadership Project 2012-2013
Two learning collaborative events were held in 2014 and 2015 to collate best practice and experiences working with children and young people with learning disabilities. As a result of these workshops, guidance on how outcome measures should be used with young Children and Young People with Learning Disabilities(LD) was published. The presentations and materials distributed at the Learning Disability workshops can be found here.
Further guidance can be found in the ‘Guide to Using Outcomes and Feedback Tools with Children, Young People and Families’ (p. 108-114).
The following resources have been suggested to us as useful for working with children and young people with learning disabilities:
- SLDOM (Sheffield Learning Disabilities Outcome Measure; 3-16 years)
- SLDOM (Sheffield Learning Disabilities Outcome Measure follow up version; 3-16 years)
Additionally the Quality Network for Inpatient CAMHS (QNIC) lists the following LD measures:
1. Nisonger Child Behaviour Rating Form (Parent)
2. Nisonger Child Behaviour Score Sheet (Parent)
3. DBC (Developmental Behaviour Checklist)
Since 2019, CORC collaborates in a BPS-funded project to grow best practice in using outcome measures in children and young people with learning disabilities (CYP-LD), their families and networks, which is built on the previous work in this field completed in 2015. Collaborators examine existing data to better understand the use of outcome measures with CYP-LD and work with service users and participation groups to gather feedback and deepen understanding.
Resources mentioned in this video with CORC Programme Manager Nick Tait and Consultant Clinical Psychologist Dr Rowena Rossiter:
The Challenging Behaviour Foundation and Mencap: Valuing the views of children with a learning disability
Nick Gore, Tizard Centre: Goals and Outcomes For Intervention “GO-For-It”: Child and family Views Project
Gore, Nick J. and McGill, Peter (2019) Making it Meaningful: Caregiver Goal Selection in Positive Behavioral Support. Journal of Child and Family Studies, online (online). pp. 1-10. ISSN 1062-1024.
NHS England: "Ask, Listen, Do"
Talking Mats: Communication symbols tool